Please see THIS post if you want more information on what Visual Snow is.
I belong and help out with a Facebook group for Visual Snow. Something that I've been doing for a few years now. Lately their has been a bit of a debate about raising money for on going research. With some even going so far to say that such research is a waste of money. Personally I think such negative views are extremely counter productive to the overall goals. Distracting us from the bigger picture at play.
Eye on Vision Foundation which is run by Jen Ambrose has been working hard for years to raise enough money to fund a full research into this condition. She like many others suffers from a more severe form of it which sometimes limits her over all vision and has a direct impact on her daily life.
My Visual Snow these days is way more mild though their are some days when my vision is directly impacted because of it. More so at night. However when thinking about the research. I don't see it from a perspective of myself. I want the research to very much move forward. Their are many of us who suffer with this condition who are in far worse shape than me.
Any time we conduct research into anything. Their is always a chance that a path may develop and new doors being opened where they didn't exist before. Medical journals have been written on "accidental" discoveries that have changed the way we operate. I see the research into visual snow not just helping us. But with other conditions such as tinnitus. A condition that readers of this blog know I suffer with on a more sever level.
Overall I feel that the efforts of Eye On Vision Foundation are extremely important to the visual snow community. I know that Mrs. Ambrose has spend a considerable amount of time and money into this effort. Those of us who deal with this condition want answers. We want this condition to be accepted as something legitimate. But we also want treatments and possible cures. We want help and so far Eye on Vision is the only group doing this.
If you would like to help out Eye On Vision Foundation. Which is a 501(c)3 origination. Please check out their donation page HERE.
-JM
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