It is not always easy when we have a chronic condition that makes taking part in every day life a struggle. To go on with our lives as if nothing is wrong. Yet knowing that our lives are by no means normal. We wake up each morning. Wondering how our issues will directly effect us. Wondering if today will be a good day or a day where we want to crawl and hide. Our struggles are very much real. Even if others don't fully understand them.
I was born with a mild case of Cerebral Palsy. Because of that I have
some mobility issues along with a host of other challenges. Too many to
list in this blog post. In addition to the Visual Snow and it's related
issues. I also suffer from hearing loss as a result of the extremely
severe case of tinnitus. In fact on any typical day the noise is far
worse than the snow. On top of that I also deal with moderate
anxiety/panic attacks. This is the reality that I live in. These are the
challenges that I face every single day. My own worse enemy happens to
be the person I see every time I look into the mirror.
Over the years the Lego Church Project has become a focal point for me. A deep statement about not letting challenges define you. When I first developed Visual Snow around 2011/12 the static was such a distraction that I wasn't sure I could work on the project. No clear idea if the VS would effect my ability to do something that I love. As you can tell from the blog and the FB page. This is not an easy project to work on. I've been doing this project for 18 years now. I refuse to let any of my challenges stop me from what I am doing. VS and the other stuff I face are just part of who I am. But they are by no means the full story. I would rather be defined by my faith. My project. My life. I don't want to be defined by my challenges. I would rather use my project and my challenges to raise awareness. To show that no matter what you face you can do something creative with your life. That God can and will use your talents in amazing and creative ways.
When you deal with any kind of chronic and on going condition. Life can be a struggle. I had a very important choice to make. One that I still make every day. I would rather do my best to rise above my challenges and to live my life the best that I can. The road is by no means easy. Even for me. But I take comfort in the fact that my challenges have not stopped me from doing the things that I love. That I have a deep passion for. What helps me to survive the rough days is my faith in Christ. My enjoyment of the Catholic faith and all that it is. Taking comfort that with Christ I know I can ride out the storms that seen to toss me around just a little too much for my liking.
I close this post out with this: People ask me how I survive with my challenges. My answer is always the same. "By the Grace of God I am still Standing."
Over the years the Lego Church Project has become a focal point for me. A deep statement about not letting challenges define you. When I first developed Visual Snow around 2011/12 the static was such a distraction that I wasn't sure I could work on the project. No clear idea if the VS would effect my ability to do something that I love. As you can tell from the blog and the FB page. This is not an easy project to work on. I've been doing this project for 18 years now. I refuse to let any of my challenges stop me from what I am doing. VS and the other stuff I face are just part of who I am. But they are by no means the full story. I would rather be defined by my faith. My project. My life. I don't want to be defined by my challenges. I would rather use my project and my challenges to raise awareness. To show that no matter what you face you can do something creative with your life. That God can and will use your talents in amazing and creative ways.
When you deal with any kind of chronic and on going condition. Life can be a struggle. I had a very important choice to make. One that I still make every day. I would rather do my best to rise above my challenges and to live my life the best that I can. The road is by no means easy. Even for me. But I take comfort in the fact that my challenges have not stopped me from doing the things that I love. That I have a deep passion for. What helps me to survive the rough days is my faith in Christ. My enjoyment of the Catholic faith and all that it is. Taking comfort that with Christ I know I can ride out the storms that seen to toss me around just a little too much for my liking.
I close this post out with this: People ask me how I survive with my challenges. My answer is always the same. "By the Grace of God I am still Standing."
No comments:
Post a Comment